FND, for those who don’t know is a serious neurological disorder of the brain. Its an umbrella for a whole host of different problems. I suffer from the functional seizure, drop seizures and reduced mobility. More info [here]
Interesting question! On Sunday a member from an FND support group answered one of my questions about blazing, blistering and agonising back pain that I get if I walk more than 500m. I was trying to find the link as to why and how a neurological problem can cause lower back pain leaving me unable to walk medium distance, well, I can but I start getting stressed, then I need to find somewhere to sit urgently (even the supermarket floor) and then a possible seizure. Anyway I digress, a guy answered saying its very common for people to have this problem when they have FND.
Moment of truth
Apparently, when you have a seizure all of the muscles tense up so tightly it starts trapping nerves, the lower back specifically. Which was a massive moment of clarity! Something made sense!
So I spent a few hours online yesterday searching for solutions to trapped nerves and everything that that entails. I found some good results and read up about it. Its all about not being stressed. That anything that tenses me up is bad. Some sites say that it wont be forever, it’ll become manageable. So that was some positive news.
FND I hate you…
I also just had a seizure lasting 7 hours of muscle seizing fun. My right leg is buggerd as the cramps haven’t stopped in that one yet. So now I’m shattered. Had a shower at 3.30am (sorry neighbours for the singing) and now sat here at the computer as my brain is awake. Its the complete black out that I hate to be honest with you. One minute am watching TV then “boom” I’m on the floor in an odd position.
Its a shame really. I was just thinking about calling the doctor on Tuesday (Monday is a bank holiday here) and seeing if I can get my driving license back. It was revoked last year due to the seizures as it affected my driving. Guess its a good thing I didn’t because this FND stuff is still impacting that part of my brain. I’ll just reset the timer again. The last one I had was a month or two ago, at least to the degree of this one. The doctor would of said no anyway. One day!
Out of curiosity do any of my readers or passer-by’s have FND or know anything about it? Please comment if so as I’d love to talk to you.
3 responses to “QOTD has returned!”
Hi, I don’t have FND but I do have epilepsy. Quite a lot of the people I met on epilepsy forums were correctly/incorrectly diagnosed with both. There was one study that differentiated the type of seizure you had by the words you used to talk about it/describe it, I can dredge it up if you are interested?Have you read any of the neurologist Suzanne O’Sullivan’s books?
Hi. That’s interesting to know that people get misdiagnosed. I’ll check her out on Amazon and find one there. Thanks for the recommendation!
There is a website out there with all the different types of seizure that you can have. I’ll have to dig out that link.
I do have FND and you have read at least one of my blog posts.